This site is intended for US residents only.

HypoPara Life Impacts Assessment

“The most critical part… was finding an endocrinologist that I’m comfortable with.” – Niles, living with HypoPara.
Compensated by Ascendis Pharmaceuticals.

Be Your Own Advocate

Woman with HypoPara talking with her doctor Woman with HypoPara talking with her doctor

Uncovering the Impacts of HypoPara

This assessment will help you better see how HypoPara affects your life.

Answer 6 quick questions to understand the impact of your disease. You can then download a PDF that is tailored to your results. Share this with your doctor to help start a conversation about your health.

This tool is not intended to take the place of talking with your doctor about your symptoms and possible strategies to decrease the impact of hypoparathyroidism on your health. Your information from the assessment will remain private and will not be saved by Ascendis Pharma.

Question 1/6
What is the cause of your HypoPara?
Question 2/6

How does your HypoPara affect your physical functioning?

Please select all that apply.
Question 3/6

What daily things in your life have been affected by your HypoPara?

Please select all that apply.
Question 4/6

Have you done any of these things in your daily life because of your HypoPara?

Please select all that apply.
Question 5/6

What feelings or emotions have you felt due to your HypoPara?

Please select all that apply.
Question 6/6

In what ways has your HypoPara affected your social life and relationships?

Please select all that apply.


Your HypoPara Impacts Report is ready!

Click the button below to download and print your personalized report. Share these results with your doctor to have more helpful conversations about your health and well-being.

Play an active role in your health with shared decision-making

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Make your voice heard. To better understand your disease, confidently talk about what you’re going through with your doctor.

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Shared decision-making can help your doctor hear your concerns and make a treatment plan based on your specific situation and needs.

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Clear communication between you and your doctor tends to make it easier to be an active part of your care, and improve your health outcomes.

Use this as a helpful guide for talking with your doctor about HypoPara

1. Are my symptoms normal for a person with HypoPara?

2. What else can I do to better manage my calcium and other important levels?

3. What other potential symptoms should I be on the lookout for?

4. Are there other treatment options that can be explored?

5. What are the long-term effects of taking calcium and vitamin D supplements?

6. How can I track my symptoms or manage my progress to make it easier to discuss my care with you?

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“Through the relationships I’ve made with others in the HypoPara community, I have been able to battle the emptiness that can come along with this life-changing event.”

– Chrissy, living with HypoPara. Compensated by Ascendis Pharmaceuticals.

Get Involved with the HypoPara Community

Joining a support group or an advocacy organization can help you learn more about your disease and how to better advocate for your health.
Here are some resources to look into:

HypoPARAthyroidism Association

Their mission is to improve the lives of people impacted by HypoPara through education, support, research, and advocacy.

Learn more

National Organization for Rare Disorders RareAction Network®

Their mission is to empower the rare disease community with a commitment to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Learn more

Did you know HypoPara can have many effects on your body?

Learn more

Learn how to navigate daily life with HypoPara

Discover useful tips

HypoPara=hypoparathyroidism; PTH=parathyroid hormone.